NEEDS AND SOURCES OF INFORMATION ON DISEASE MANAGEMENT FOR PARENTS OF CHILDREN WITH DIABETES MELLITUS
DOI:
https://doi.org/10.17770/sie2020vol6.5038Keywords:
disease management, needs and sources of information, parents, type 1 diabetesAbstract
Type 1 diabetes mellitus in children alters the rhythm and daily routines of children and parents, as there appears a need to treat and control this disease. Parents need to learn how to optimally care for the health of their children: monitor levels of blood glucose, follow a diet plan, inject insulin and organize the child’s schedule. Research object: needs and sources of information for parents of children with diabetes mellitus on the management of their child’s disease. Research aim is to reveal the needs and sources of information on the disease and its management for parents of children with diabetes mellitus. Research tasks: 1) to identify the needs of parents of children with diabetes mellitus for information on the disease management; 2) to reveal how and in what ways parents search for information on the child’s disease and its management. Research methods: theoretical – analysis, generalization and systematization of scientific literature; empirical – a semi-structured method of interview has been used for the collection of data; method of content analysis has been applied to the study of research data. There were 6 women of children with diabetes mellitus, who agreed to participate in the research. Participants of the research raise children who have diabetes mellitus up to 3 years after diagnosis; children’s age ranges from 3 to 11 years old. All women had higher education. The empirical study revealed that mothers of children with diabetes mellitus require information on the child’s disease and its control. Participants of the research mentioned that they try to obtain information from various sources: medical institutions, relatives, the Internet, social networks, etc.
Downloads
References
Albanyan, N., Albanyan, A., Adel, A., & Zaiton, M. (2018). Parental Knowledge and Attitudes Toward Diabetes Mellitus Type 1: A Cross Sectional Study. Europian society for pediatric endocrinology, 89, 110 – 119.
Bechara, G. M., Castelo Branco, F., Rodrigues, A. L., Chinnici, D., Chaney, D., Calliari, L. E. P., & Franco, D. R. (2018). “KiDS and Diabetes in Schools” project: Experience with an international educational intervention among parents and school professionals. Pediatric diabetes, 19(4), 756-760.
Boman, A. (2017). Learning by supporting others—experienced parents’ development process when supporting other parents with a child with type 1 diabetes. Clinical nursing, 21, 56- 59.
Coppola, A., Luzi, L., Montalcini, T. Giustina, A., & Gazzaruso, C. (2018). Role of structured individual patient education in the prevention of vascular complications in newly diagnosed type 2 diabetes: the Individual Therapeutic Education in Newly Diagnosed type 2 diabetes (INTEND) randomized controlled trial. Primary care, 60(1), 46 – 49.
Čergelytė –Podgrušienė, I., & Gudžinskienė, V. (2019). Tėvų, auginančių cukriniu diabetu sergantį vaiką, emocinė būklė ir mokymosi susigyventi su liga patirtis. Socialinis darbas, 17(1), 70 – 83
Goethals, E.R., Oris, L., Soenens, B. Berg, C.A., Prikken, S., Van Broeck, N., Weets, I., Casteels, K., & Luyckx, K. (2017). Parenting and Treatment Adherence in Type 1 Diabetes Throughout Adolescence and Emerging Adulthood. Pediatric Psychology, 42(9), 922 – 932.
Grossoehme, D.H, Smith, E., Standiford, D. Morwessele, N., Kichler, J., Maahs, D., Driscoll, K.A., & Seid, M. (2019). Understanding adolescent and parent acceptability and feasibility experience in a large Type 1 diabetes mellitus behavioural trial. Diabetic medicine, 6, 1- 8.
International Diabetes Federation (2019). IDF Diabetes atlas (nin edition).Brussels: Belgium.
Kadhim, N.Q, Al-farari, S.M.H, & Maher, F.T (2019). Study of topoisomerase I (Topo I) level and some biochemical parameters in diabetic patients. EurAsian journal of BioSciences, 13, 517 – 522.
Lange, K., Swift, P., Pankowska, E., & Danne, T. (2014). Diabetes education in children and adolescents. Pediatric Diabetes, 15(20), 77 – 85.
Law, E., Fisher, E., Eccleston, C., & Palermo, T. (2019). Psychological interventions for parents of children and adolescents with chronic illness. The Cochrane collaboration, 18(3) 123 – 126.
Lee, V.R., & Dubovi, I. (2019). At Home With Data: Family Engagements With Data Involved in Type 1 Diabetes Management. Journal of the learning sciences, 25, 11 – 31.
Mayring, P. (2000). Retirement as crisis or good fortune? Results of a quantitative-qualitative longitudinal study. Gerontol geriat, 33(2), 124 – 133.
Phelan, H., Lange, K., Cengiz, E., Gallego, P., Majaliwa, E., Pelicand, J., Smart, C. & Hofer, S. E. (2018). ISPAD Clinical Practice Consensus Guidelines 2018: Diabetes education in children and adolescents. Pediatric diabetes, 19, 75-83.
Povey, R.C, & Clark – Carter, D. (2007). Diabetes and healthy eating: a systematic review of the literature. Sage journal, 33(6), 931- 959.
Prikken, S., Raymaekers, K., Oris, L., Rassart, J. Weets, I., Moons, P., & Luyckx, K. (2019). A triadic perspective on control perceptions in youth with type 1 diabetes and their parents: Associations with treatment adherence and glycemic control. Diabetes research and clinical practice, 150, 264 – 273.
Rawdon, C., Gallagher, P., Glacken, M. Swallow, V., & Lambert, V. (2019). Parent and adolescent communication with healthcare professionals about Type 1 diabetes management at adolescents' outpatient clinic appointments. Diabet Med, 10, 1 – 12.
Schiaffini, R., Carducci, C., Cianfarani, Mauti, M., & Nicolais, G. (2019). Post-traumatic Stress Disorder in Children Affected by Type 1 Diabetes and Their Parents. Comprehensive clinical medicine, 1(5), 349 – 353.
Van Gampelaere, C., Luyckx, K., Van Ryckeghem, D., Van der Straaten, S., Lardiaen, J., Goethals, E. R.,Casteels, K., Vanbesien, J., Den Brinker, M., Cools. M., & Goubert, L. (2019). Mindfulness, worries andparenting in parents of children with type 1 diabetes. Journal of Pediatric Psychology, 44(4), 499-508.
Yilmaz, Y., Polat, S., Yildiz, M., Turgut, S.B., Topal, N., Aydin, B., Onal, H., Tekeli, H., & Doty, R.L. (2019). Sense of smell and quality of life in children with diabetes mellitus. International journal of pediatric otorchinolaryngology, 123, 43 – 46.
Weng, A.T, Zachariae, C., Christensen, K.B., Svensson, J.,& Berg, A.K. (2019). Five-Month Follow-up Shows No Improvement in Dermatological Complications in Children With Type 1 Diabetes Using Continuous Glucose Monitoring Systems and Insulin Pumps. Journal Sage, 16, 1 – 7.
World Health Organization. (2016). World health statistics: Monitoring health for the Sustainable development goals. Switzerland: Geneva.
Žydžiūnaitė, V., & Sabaliauskas, S. (2017). Kokybiniai tyrimai – principai ir metodai. Vilnius:Vaga.
Žilinskienė, J., Šinkariova, L., & Perminas, A. (2007). Paauglių, sergančių cukriniu diabetu, depresiškumo ypatybės. Visuomenės sveikata, 43(1), 65 - 69.
