PSYCHOLOGICAL NEEDS OF DEMENTIA PATIENTS IN SOCIAL CARE INSTITUTION: A QUALITATIVE STUDY
DOI:
https://doi.org/10.17770/sie2018vol7.3429Keywords:
dementia, psychological needs, social care institution, qualitative studyAbstract
Psychological needs are present in all human beings, but are likely to be heightened for people with dementia because they are usually more vulnerable and less likely to be able to take action to satisfy these needs. The open, unstructured interviews of six patients with dementia were performed with the aim of clarifying their psychological needs in the social care institution. Key themes, derived from interviews: the need for emotional support; the need to maintain autonomy and independence; the need for dignified attitude; the need to participate in decision making and control their lives; the need to preserve the sense of identity; the need to engage in meaningful activities. One expert - social rehabilitator – was interviewed to find out, in which areas dementia patients need psychological support. The expert interview discovered the following themes: dignified attitude; emotional support; meaningful activities; the sense of identity. Increased competence of understanding psychological needs and how those needs can be met, are essential for delivering high-quality care for persons with dementia living in social care institutions.Downloads
References
Bradbury-Jones, C., Sambrook, S., & Irvine, F. J. (2009). The phenomenological focus group: an oxymoron? Advances in Nursing Science, 65(3), 663-671. doi: 10.1111/j.1365-2648.2008.04922.x.
Buettner, L., & Fitzsimmons, S. (2003). Activities calendars: what you see is not what you get. American Journal of Alzheimer’s Disease, 18(4), 215-226. doi.org/10.1177/153331750301800405.
Choi, N. G., Ransom, S., & Wyllie, R. J. (2008). Depression in older nursing home residents: the influence of nursing home environmental stressors, coping, and acceptance of group and individual therapy. Aging and Mental Health, 12 (5), 536-547.
doi: 10.1080/13607860802343001.
Catanese, K. R., & Tice, D. M. (2005). The Effect of Rejection on Anti-Social Behaviors: Social Exclusion Produces Aggressive Behaviors. In K. D. Williams, J. P. Forgas, & W. von Hippel (Eds.), Sydney Symposium of Social Psychology series. The social outcast: Ostracism, social exclusion, rejection, and bullying (pp. 297-306). New York: Psychology Press.
Cohen-Mansfield, J., Dakheel-Ali, M., Marx, M.S., Thein, K., & Regier, N. (2015). Which unmet needs contribute to behavior problems in persons with advanced dementia? Psychiatry Research, 228 (1), 59-64. doi: 10.1016/j.psychres.2015.03.043.
Elo, S., & Kyngäs, H. (2007). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107-115. doi: 10.1111/j.1365-2648.2007.04569.x.
Feinberg, L. F., & Whitlatch, C. J. (2001). Are persons with cognitive impairment able to state consistent choices? The Gerontologist, 41, 374-382. doi: org/10.1093/geront/41.3.374.
Gardner, W. L., Pickett, C. L., Jefferis, V., & Knowles, M. L. (2005). On the outside looking in: Loneliness and social monitoring. Personality and Social Psychology Bulletin, 31, 1549-1560. doi: org/10.1177/0146167205277208.
Katsuno, T. (2003). Personal Spirituality of Persons with Early-Stage Dementia. Is it Related to Perceived Quality of Life? Show all authorsDementia, 2 (3), 315 – 335. doi.org/10.1177/14713012030023003
Moore, T.F., & Hollett, J. (2003). Giving voice to persons living with dementia: the researcher’s opportunities and challenges. Nursing Science Quarterly,16(2), 163-167. doi: 10.1177/0894318403251793251793
Moyle, W., Fetherstonhaugh, D., Greben, M., Beattie, E., & AusQoL Group (2015). Influencers on quality of life as reported by people living with dementia in long-term care: a descriptive exploratory approach. BMC Geriatrics, 15:50. doi.org/10.1186/s12877-015-0050-z.
Mozley C, Sutcliffe C, Bagley H, Cordingley, M.E., Challis, D., Huxley, P., & Burns, A. (2004). Towards Quality Care: Outcomes for Older People in Care Homes. Ashgate: Aldershot.
National Institute on Aging (NIA). (2017). About Alzheimer's disease: Symptoms. Retrieved from https://www.nia.nih.gov/alzheimers/topics/symptoms
Orrell, M., & Hancock, G.A. (2004). The Camberwell Assessment of Need for the Elderly (CANE). Gaskell: London.
Scholl, J. M., & Sabat, S. R. (2009). Stereotypes, stereotype threat and ageing: implications for the understanding and treatment of people with Alzheimer's disease. Aging and Society, 28 (1), 103-130. doi: org/10.1155/2015/954027.
Soderlund, M., Cronqvist, A., Norberg, A., Ternestedt, B. M., & Hansebo, G. (2016). Conversations between persons with dementia disease living in nursing homes and nurses-qualitative evaluation of an intervention with the validation method. Scandinavian Journal of Caring Sciences, 30, 37-47. doi: 10.1111/scs.12219.
Twenge, J. M., & Im, C. (2007). Changes in the need for social approval, 1958-2001. Journal of Research in Personality, 41, (1), 171-189. doi: org/10.1016/j.jrp.2006.03.006.
van Gennip, I. E., Pasman, H. R. W., Oosterveld-Vlug, M. G., Willems, D. L., & Onwuteaka-
Van Malderen, L., Mets, T., & Gorus, E. (2013). Interventions to enhance the Quality of Life of older people in residential long-term care: a systematic review. Ageing Research Reviews, 12 (1), 141-150. doi: 10.1016/j.arr.2012.03.007.
van Gennip, I. E., Pasman, H. R. W., Oosterveld-Vlug, M. G., Willems, D. L., & Onwuteaka-Philipsen, B. D. (2016). Dementia Affects Personal Dignity: A Qualitative Study on the Perspective of Individuals With Mild to Moderate Dementia. Journals of Gerontology: Social Sciences, 71 (3), 491 – 501. doi:org/10.1093/geronb/gbu137.
Von Kutzleben M, Schmid W, Halek M, Holle B, Bartholomeyczik S (2012). Community-Dwelling persons with dementia: What do they need? What do they demand? What do they do? A systematic review on the subjective experiences of persons with dementia. Aging and Mental Health 16, 378-390. doi: 10.1080/13607863.2011.614594.
